News Archive - Page 2 of 61

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

A woman from the Scottish Borders is demanding change to Scotland’s home adaptations system after being forced to wait more than a year for essential work - despite the average life expectancy following a diagnosis of motor neuron disease (MND) being just 18 months.

“Until you see it firsthand, you’ll never understand how horrific it is.”

East Lothian business announces charity partnership with MND Scotland after losing “incredible” Dad to MND

“People making home modifications often have time to wait. People with MND don’t.”

Lisa McDonald, from Edinburgh, has spoken out about the delays and system failures that left her partner, Billy, unable to leave the house during the final stages of his life.

Guidance for Occupational Therapists to support people living with a terminal illness

The practice note, developed by MND Scotland, the Royal College of Occupational Therapists, consultants and neurology occupational therapists, Association of Local Authority Chief Housing Officers (ALACHO), and Marie Curie, offers guidance for occupational therapists on supporting people living with terminal illnesses when they require housing adaptations.

Ayrshire man to run local marathon in honour of families affected by motor neuron disease (MND)

Twenty-five-year-old, Thomas Lindsay, from Ayrshire, is taking on an incredible marathon this weekend, running a round trip from Ayr to Troon beach. He is taking on the challenge to help raise important funds for MND Scotland in honour of family friends who have been affected by motor neuron disease (MND).

Update on amantadine from MND-SMART trial

MND-SMART has announced the latest results of the third drug to be tested by the innovative clinical trial.

Glasgow Business Owner Shares Emotional Tribute to Mother‑in‑Law who battled MND

Glasgow hairdresser and business owner, Jade Hayter, is sharing the story of her late mother‑in‑law, Margaret “Mags” McQuaid, to help raise awareness of the number of women affected by motor neuron disease (MND).

Celtic FC Foundation and MND Scotland Team Up For Jimmy Johnstone 20th Anniversary Event

On Bank Holiday Monday, 4 May 2026, MND Scotland and Celtic FC Foundation will host ‘Jinky’s Journey’ - a 7‑mile walk from Viewpark to Celtic Park celebrating the life and legacy of Celtic and Scotland legend, Jimmy Johnstone.

MND Scotland launches Manifesto ahead of 2026 election

Ahead of the Scottish Parliament Elections in May 2026, MND Scotland has appealed to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like motor neuron disease (MND).

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“At the end of the challenge, if I’m tired or hurting, that’s temporary. What people with MND go through isn’t. That’s why I’m doing it.”