Bereavement Support

If you have lost a loved one to motor neuron disease (MND), you are not alone. We are here to support you through this difficult time and to help you find the support you need.

Apply to use our free Counselling Service

When someone you love dies of MND, it can feel very distressing, isolating and confusing, and there is no right or wrong way to express grief.

Talking to someone outside your family or circle of friends may help you better understand your feelings and manage your difficult circumstances.

Our free bereavement counselling is available to you three months after your loved one has passed away. You can access this service if you’re aged over 18, live in Scotland and:

Have lost someone to MND who you provided unpaid care for


Are an immediate family member of someone who had MND, e.g. spouse, partner, son, daughter, parent

It's important to know that you are not alone

Thoughts and feelings of bereaved carers.

How our counselling could help you

Our Counselling Service could help you manage your situation by:

Allowing you to speak openly about complex and painful emotions

Making you feel better equipped to look towards the future

Helping you work through the different stages of grief

Helping you adapt to life without your loved one

Reducing the sense of fear, anxiety or depression you may be feeling

Giving you new ways to think and manage difficult feelings

"There were lots of tears, some laughter but I was able to understand why it had taken me so long to accept that counselling was needed and also to realise that it was okay to feel the way I did and that there wasn’t a time frame for grief. I’m certainly glad I approached MND Scotland for support, it wasn’t easy for me to do that, but I’m glad I did."

Kirsty MacLean, who lost her husband to MND

How to access our Counselling Service

Need urgent help?

If you need to speak to someone right now about difficult emotions you’re experiencing, you can reach out to:

What happens after you’re referred

If you’re referred to our Counselling Service, we’ll contact you to identify your needs and make sure you're suitable for the service.

If you are suitable, you’ll be able to access up to 12 free one-to-one counselling sessions. Each session usually lasts up to one hour and takes place once a week. But we can be flexible to meet your needs and availability.

Support Services Referral

Grief programme

Throughout 2023, we collaborated with ALS Canada who are experienced in running a seven-week bereavement workshop. ALS Canada has agreed to work with us in 2024 to develop our own workshop.

Our What Matters survey showed there is a need for continued support for people who have lost a loved one to MND. The aim of the Grief Programme is to provide individuals with an opportunity to share their experience and find support.

An initial pilot scheme ran in February 2024. If you are struggling with your grief and would like more support with a future group, please email for more information. We ask that there is a minimum of three months from the death of a loved one and enrolment in this programme.

The Grief Programme will be held in the evening virtually via Zoom.

Email us at for information on future sessions.


For those that feel it would be helpful to read more about grief and understand more about the help available, we have collated additional links that you may find helpful.

Anticipatory grief

Support is available for the grief process leading up to an expected loss.

Checklist and symptoms and 4 stages + 9 ways to support yourself

Before a death

What is a terminal Illness

What to expect at the end of someone’s life

NHS Inform – coping with grief

Cruse Bereavement Support

Sue Ryder Grief Guide

Good life, good death, good grief

Child Bereavement UK – Support for bereaved young people

Support for children

Winstons Wish

Scottish Government practical advice

Tell us Once Service

Who will look after my dog

Supporting LGBT+ people around bereavement

Widowed and Young – bereavement support

Support for Men – Strongmen 

Financial support

Following the death of the person you cared for, there may be many practical issues to deal with, including claiming financial support you’re entitled to. Taking care of these issues while dealing with the emotional impact of your bereavement can be very difficult. You are not alone. We can help to make claiming benefits one less worry for you. 

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