Free Benefits Advice
If you’re living with motor neuron disease (MND) or care for someone with MND, we can help you claim benefits you’re entitled to.
Our free and confidential Welfare and Benefits Advice Service can take the stress out of claiming benefits and help improve your financial situation.
How we can help you
“ MND Scotland’s welfare and benefits officer has been a lifesaver. She has been so supportive and helped us fill in complicated forms, which lifted a huge weight off our shoulders.”
Benefits if you haven’t reached pension age and are unable to work
Benefits if you have reached pension age
Help with transport and parking
Blue Badge scheme
Benefits at end of life
If you’re living with a terminal illness and not expected to live for longer than six months, your claim for benefits may be fast-tracked and paid at the highest rate. You will need to apply under special rules.
The main benefits covered by the special rules are:
- Personal Independence Payment (PIP)
- Disability Living Allowance (DLA)
- Attendance Allowance
- Employment and Support Allowance (ESA)
- Universal Credit (UC)
If you live longer than six months following your claim, your benefits will continue but your claim may be reviewed after three years.
Please note: the Scottish Government’s new Adult Disability Payment has a separate definition of special rules.
If you’re looking after someone with MND
You may be entitled to Carer’s Allowance if you look after someone with MND for at least 35 hours a week and they get certain benefits. Find out if you’re eligible. If you receive Universal Credit, you may be able to get the carer element, even if you do not qualify for Carer’s Allowance.
If you get Carer’s Allowance or the carer element of Universal Credit, you are not affected by the benefit cap.
If you care for a person for at least 20 hours a week but are not eligible for Carer’s Allowance, you may be able to get Carer’s Credit.
This is a credit that fills gaps in your National Insurance record. This record decides whether you qualify for a State Pension, Employment and Support Allowance and Jobseeker’s Allowance.
Carer’s Allowance Supplement
Most people in Scotland who get Carer’s Allowance also automatically receive Carer’s Allowance Supplement every six months. This benefit comes from Social Security Scotland and is usually paid in June and December.
Young Carer Grant
You may be able to claim a Young Carer Grant from the Scottish Government if you’re aged 16 to 18, live in Scotland, care for someone for an average of 16 hours a week, and have been a carer for at least the past three months. Currently, a Young Carer Grant is a yearly payment of £326.65.
After someone dies
Following the death of the person you cared for, there may be many practical issues to deal with, including claiming financial support you’re entitled to. Taking care of these issues while dealing with the emotional impact of your bereavement can be very difficult.
This is why we encourage you to contact an MND Scotland welfare and benefits officer after someone dies. We can help to make claiming benefits one less worry for you.
Bereavement Support Payment
If your husband, wife or civil partner dies, you may be able to claim a benefit called Bereavement Support Payment.
To get Bereavement Support Payment, you must have been under State Pension age when your partner died.
You must claim the benefit within three months of your partner’s death to get the full amount. You can claim up to 21 months after their death but you’ll get fewer monthly payments.
Funeral Support Payment
You may be able to claim a Funeral Support Payment if you live in Scotland and you or your partner are getting certain benefits or tax credits.
To get the Funeral Support Payment, the person who has died must have lived in the UK.
You must be responsible for the funeral and costs and claim within six months of the date of the funeral.
Find out what benefits you’re entitled to
Please fill in this form to let us know you would like to speak to our welfare and benefits advisor. We’ll then get in touch to arrange an appointment with you.
Alternatively, you could ask your MND clinical nurse specialist to arrange an appointment for you.
Please note: All questions marked with an asterisk (*) must be answered before submitting your application.
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