News Archive - MND Scotland

MND-SMART trial begins testing fourth drug with introduction of tacrolimus

The MND-SMART clinical trial has launched a fourth investigational arm to test tacrolimus as a potential treatment for motor neuron disease (MND).

Dunfermline Personal Trainer completes Edinburgh and London Marathons in support of MND Scotland

Angus Mcdonald, a qualified Personal Trainer from Dunfermline, recently completed the Edinburgh and London Marathon to help raise awareness and funds for MND Scotland and in memory of his father, Nigel.

Carol Scott from Glenrothes takes on Lairig Ghru trek in support of brother

Carol Scott from Glenrothes, Fife, will take on the Lairig Ghru 19-mile trek from Linn of Dee to Rothiemurchus on Global Awareness Day, 21 June 2025, in support of her brother, David, who is living with motor neuron disease.

Global MND Awareness Day – Alan shares his story

To mark Global MND Awareness Day (21 June), MND Scotland shares the story of a brave local man from a small Scottish village who is courageously navigating a diagnosis of motor neuron disease (MND).

Cllr Lorraine Cameron, Provost of Renfrewshire, shares her personal connection to motor neuron disease

In this blog, Cllr Lorraine Cameron, Provost of Renfrewshire shares her personal connection to motor neuron disease and the challenges she faced when she learned that her mother was diagnosed with the condition. She also discusses her fundraising efforts for MND Scotland, through which she has raised over £34,000 during her term as Provost of Renfrewshire to help support other families affected by motor neuron disease.

Keen runner from Edinburgh will take part in the Wellington Marathon, New Zealand, in honour of father who battled motor neuron disease

Andrew Wonnacot, 58, grew up in Leith, Edinburgh. He moved to New Zealand at the age of 37 and works for a civil engineering company specialising in infrastructure. He has an older brother, Mike, and younger sister, Angie, and three children, Liam, Zack, and Leith - named in tribute to his Scottish roots.

MND Scotland welcomes Care Reform (Scotland) Bill fast-tracking for people with a terminal illness

Amendment 69, brought forward by Scottish Labour MSP, Paul Sweeney, ensures everyone living with a terminal illness is entitled to a priority care assessment, and expeditious reassessment if their needs change.

“We are on this journey, but it helps to know the MND community is there for you”: Stuart shares his story this Carer’s Week

This week, MND Scotland is acknowledging the commitment, strength and resilience of over 700,000 unpaid carers in Scotland who provide vital support to family members, friends and loved ones with needs. One of those carers is Stuart Mactaggart. Stuart cares for his wife, Claire, following a motor neuron disease diagnosis.

Volunteering, Work That Matters

It’s Volunteers’ Week, an annual event that helps us recognise and celebrate all the volunteer contributions that takes place in the UK. We want to thank, appreciate, and celebrate the time, effort and dedication of our volunteers at MND Scotland and the work they’ve put into helping people affected by MND and supporting our cause.

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Lived Experience and Researcher Network (LEARN) 2025 announcement