News Archive - MND Scotland

Student Honours Late Father with Marathon to Raise Funds for MND Scotland

Abbi Noone, a 21-year-old from Gourock, Renfrewshire, will run the prestigious TCS London Marathon on 27 April 2025, to honour the memory of her father, Mark, who battled motor neuron disease (MND). By taking on this challenge, she aims to help other families affected by the disease by raising vital funds for MND Scotland.

Update on Ellorarxine

During 2024, encouraging research was published by the Universities of Durham and Aberdeen that demonstrated that a new drug, Ellorarxine, was able to reduce the death of rodent neurons grown in a dish, including those containing an alteration found in some forms of MND.

Telehealth in MND (TiM) project delivers tool for supporting care for people with MND

An MND Scotland funded research project awarded to the University of Sheffield has helped develop a new tool for supporting care for people with MND.

MND-SMART update on amantadine

Following a review of stage 1 interim analysis data for amantadine, it has been decided that amantadine will continue to be evaluated as part of the MND-SMART trial.

What did attendees think of the LEARN local events?

To round up the local events our Research Lead, Paul Jensen, has brought together some quotes from attendees, who kindly shared with us their thoughts on what the events meant to them.

Statement on Assisted Dying from MND Scotland CEO, Rachel Maitland

The topic of assisted dying is receiving a significant amount of media attention due to legislation currently before both the UK and Scottish Parliaments.

MND Scotland project highlights need for individualised support for those caring for loved ones with MND

The project, carried out at the University of East Anglia by Professor Eneida Mioshi and Dr Polly Trucco, aimed to identify key factors influencing anticipatory grief to better support unpaid family carers and inform future interventions and research.

Join us at CORE – a full day event for people affected by MND and researchers

MND Scotland and My Name’5 Doddie Foundation are teaming up to host a day-long event for people in Scotland affected by MND and MND researchers.

NICE decision on tofersen welcomed following successful MND Association campaign

We welcome the announcement this morning from NICE that they will now appraise the drug tofersen via the Highly Specialised Technologies (HST) route.

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MND Scotland supporter successfully completes Everest Base Camp Trek