News Archive - MND Scotland

What attendees learned at the Community of Research and lived Experience (CORE) event

On 3 March 2025, MND Scotland and My Name’s Doddie Foundation welcomed people with and affected by MND from Scotland, and MND researchers from across the UK, to Dynamic Earth in Edinburgh for our inaugural CORE event. It was a wonderful experience which provided a platform for the MND community to come together and share their knowledge, opinions and experience on MND research through our shared goal of a world without MND.

Local man with motor neuron disease will use a wheelchair pushed by his son to reach the finish line of his seventh marathon

Michael will participate in this year's Edinburgh Marathon for first time together with his son Andrew who will push him along the whole route in a sports wheelchair. Michael will be running his seventh marathon, while Andrew will be participating in his third. Andrew has also completed several ultra marathons, including the West Highland Way twice.

Kirkcaldy man takes on Rob Burrow Leeds Marathon to honour legacy of childhood friend and MND campaigner, Gordon Aikman

Kenney Collins, 38, from Kirkcaldy, will participate in the Rob Burrow Leeds Marathon this year in memory of Gordon Aikman, and hopes to raise funds for MND Scotland to help other families affected by motor neuron disease in Scotland.

Two Glasgow brothers set to take on four fundraising challenges during May in memory of beloved mother who battled motor neuron disease

Steven and Alan Lindsay are undertaking four remarkable fundraising challenges to honour the memory of their beloved mother, Barbara Lindsay who passed away earlier this year after a courageous battle with motor neuron disease.

Remarkable Woman, Claire Berry, Living with Motor Neuron Disease: A Heartwarming Mother’s Day Tribute

As Mother's Day approaches, MND Scotland recognises the incredible resilience and strength of women, mothers and caregivers who, despite facing their own challenges, maintain a positive outlook on life and continue to be a source of support and hope for their children, families, and loved ones. This week, MND Scotland shines a spotlight on Claire Berry, an incredible woman living with motor neuron disease who continues to inspire her three loving children and family through her bravery.

Aberdeen man honours family friend with 5k-a-day fundraising challenge for motor neuron disease

Michael Hopkins, 42, from Aberdeen, has embarked on an inspiring journey to raise funds and important awareness for MND Scotland by taking on a 5K-a-day challenge this year as a tribute to a family friend battling the disease.

Optician Alan takes on fight against motor neuron disease by competing in the Paris marathon in honour of Brother

Alan Arnott will take on the Schneider Electric Marathon of Paris on Sunday 13th April 2025 in support of MND Scotland to honour the memory of his late brother, Michael, who bravely battled motor neuron disease (MND).

MND Scotland honours dedicated supporter for raising over £222k for motor neuron disease

Andy Huxtable (56), an Air Traffic Controller for NATS (National Air Traffic Services) from Ayr, has raised an impressive total of over £220,000 for MND Scotland. His efforts contribute to the charity’s vision of a world without motor neuron disease (MND), a brutal condition that affects hundreds of families across Scotland.

Connor is braving the West Highland Way to honour late aunt

Twenty-three-year-old, Connor Whitelaw from Kirkintilloch, will take on the West Highland Way this year to honour the memory of his beloved aunt Gwen, a vibrant lady, loved dearly by family and friends, whose laughter brought joy to those who knew her. Connor hopes to raise important awareness and vital funds in support of MND Scotland to help other families affected by motor neuron disease (MND).

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Shining a Spotlight on UK Innovation in MND Research at the BNA Festival of Neuroscience 2025