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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

Support strategies could assist people living with MND in making decisions about their health.

04/02/2026

In 2020 MND Scotland funded £153,000 towards a project that assessed the needs of people living with MND in making decisions related to their care. The project, carried out at the University of Edinburgh by Professor Sharon Abrahams and Dr Milena Contreras, found that those who have changes in cognition (thinking) benefit from having specific support strategies when making these decisions.

Celtic FC Foundation and MND Scotland Team Up For Jimmy Johnstone 20th Anniversary Event

On Bank Holiday Monday, 4 May 2026, MND Scotland and Celtic FC Foundation will host ‘Jinky’s Journey’ - a 7‑mile walk from Viewpark to Celtic Park celebrating the life and legacy of Celtic and Scotland legend, Jimmy Johnstone.

MND Scotland and Scottish Government fund project to improve the delivery of environmental controls for people with MND

Dr Megan Bolton, from NHS Greater Glasgow and Clyde, has received a Gordon Aikman Scholarship, funded by MND Scotland and the Scottish Government. Dr Bolton will receive £16,000 to fund her research into the delivery of environmental controls across Scotland.

MND Scotland launches Manifesto ahead of 2026 election

Ahead of the Scottish Parliament Elections in May 2026, MND Scotland has appealed to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like motor neuron disease (MND).

Celebrating Creativity and Courage: Steven Hart’s Journey with Motor Neuron Disease

Steven Hart, artist, screenwriter, and former Art and Design lecturer from Glasgow, has lived a life defined by creativity, resilience, and a passion for storytelling. In 2020, Steven, 69, was diagnosed with motor neuron disease (MND) – a progressive and incurable condition that affects the nervous system.

NICE assessment of tofersen to being in 2026

Tofersen will now be considered by the National Institute for Health and Care Excellence (NICE) to determine whether it can be provided by the NHS in England.

What was it like at this year’s MND Scotland LEARN events?

In this blog, we share quotes from attendees who kindly provided their thoughts on the significance and impact of this year's LEARN events.

Running for Dad: Andrew McEwen’s Mission to Support Families Affected by MND

Every day, incredible supporters like Andrew McEwen take on fundraising challenges and contribute to MND Scotland’s vision of a world without motor neuron disease (MND).

Pioneering MND Pledge launched by the Federation of Local Housing Associations in Renfrewshire and East Renfrewshire (FLAIR)

Six housing associations who make up FLAIR - Barrhead, Bridgewater, Ferguslie Park, Linstone, Paisley and Williamsburgh - have formally committed to enhancing their service provision for tenants and owners diagnosed with MND in their communities. On Tuesday 18th November, FLAIR launched the first-of-its-kind cross-association pledge to support the housing needs of people living with MND.

From the Lab to the Finish Line: Aberdeen-Based Researcher is Running for MND Scotland

Hazel Allardyce, a Research Scientist at the University of Aberdeen, will take on the Fraserburgh Half Marathon on Sunday 16 November 2025, in support of MND Scotland and in honour of her uncle.

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