News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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“I remember the day. It was absolutely the saddest moment of my life.”

Galashiels Academy PE Teacher Prepares for Edinburgh Half-Marathon Following Father’s MND Diagnosis

Jinky’s Journey event raises over £20,000 for Celtic Foundation and MND Scotland

On Bank Holiday Monday, 4 May 2026, over 70 wonderful fundraisers took to the streets of North Lanarkshire in the sunshine and headed to Glasgow’s East End, to honour a Celtic legend, while raising vital funds for two hugely important causes. 

New PhD Studentship: Exploring Gut Tissue Biomarkers for Earlier ALS Diagnosis

MND Scotland has partnered with LifeArc, to fund a new PhD Studentship. Dr Marta Vallejo at Heriot-Watt University will receive almost £100,000 to explore whether changes in gut tissue can provide early warning signs of motor neuron disease (MND).

“It’s not just about raising funds it’s about raising awareness so people can reach out and get support when they need it”

Will Mackie, 44, is preparing for the challenge of a lifetime – an unsupported 3000-mile row from La Gomera, Canary Islands, to the Island of Antigua, Caribbean, as part of the World’s Toughest Row in December 2026.

“MND doesn’t care which football team you support. It can affect every family, every background”

On Bank Holiday Monday, 4 May 2026, MND Scotland and Celtic FC Foundation will host “Jinky’s Journey”, a 7mile walk from Viewpark to Celtic Park celebrating the life and legacy of the late Celtic Football Club legend Jimmy “Jinky” Johnstone, who was diagnosed with motor neuron disease (MND) in 2001. 

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

Nicola McFarlane was diagnosed with motor neuron disease (MND) in May 2023 when she was forty-six years old. She worked full-time, stayed fit and active, and lived an independent life.

MND Scotland Coffee Afternoon Events

MND Scotland is happy to announce that coffee afternoon events for the MND community will take place in Dundee and Glasgow in June 2026.

“He never let MND get him down, even when he knew what was coming.”

Zoe MacDonald, 18, from Oban, will take on an incredible 10,000 feet skydive challenge in St Andrews on 27 June 2026 in honour of her firefighter uncle, Brian MacDonald.

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.

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