Ahead of the Scottish Parliament election this Spring, MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).
MND Scotland is calling on the next government to deliver:
1. Invested in, and fast-tracked, housing and adaptations;
2. Fast- tracked social care;
3. Increased, targeted funding for neuro-progressive conditions.
To support our campaign, over the coming weeks we will share the personal stories of people with experience of issues around social care, housing or research.
You can also support our Manifesto by spreading the word on social media.
Our Open Letter to the First Minister
In Scotland right now, 481 people are living with Motor Neuron Disease (MND). Between now and 2031, we estimate another 1,000 more people will be diagnosed across the country. There is no cure. The average life expectancy is just 18 months from the point of being diagnosed.
MND Scotland is appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND. But we need your support.
Our policy news
“People making home modifications often have time to wait. People with MND don’t.”
Lisa McDonald, from Edinburgh, has spoken out about the delays and system failures that left her partner, Billy, unable to leave the house during the final stages of his life.