News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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“It’s not just about raising funds it’s about raising awareness so people can reach out and get support when they need it”

Will Mackie, 44, is preparing for the challenge of a lifetime – an unsupported 3000-mile row from La Gomera, Canary Islands, to the Island of Antigua, Caribbean, as part of the World’s Toughest Row in December 2026.

“MND doesn’t care which football team you support. It can affect every family, every background”

On Bank Holiday Monday, 4 May 2026, MND Scotland and Celtic FC Foundation will host “Jinky’s Journey”, a 7mile walk from Viewpark to Celtic Park celebrating the life and legacy of the late Celtic Football Club legend Jimmy “Jinky” Johnstone, who was diagnosed with motor neuron disease (MND) in 2001. 

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

Nicola McFarlane was diagnosed with motor neuron disease (MND) in May 2023 when she was forty-six years old. She worked full-time, stayed fit and active, and lived an independent life.

MND Scotland Coffee Afternoon Events

MND Scotland is happy to announce that coffee afternoon events for the MND community will take place in Dundee and Glasgow in June 2026.

“He never let MND get him down, even when he knew what was coming.”

Zoe MacDonald, 18, from Oban, will take on an incredible 10,000 feet skydive challenge in St Andrews on 27 June 2026 in honour of her firefighter uncle, Brian MacDonald.

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.

Johnstone man takes on Dunoon Ultra in memory of colleague who lived with MND

Mark Bischuk, 55, from Renfrewshire, will take on the tenth anniversary Dunoon Ultra on 22 August 2026 in support of MND Scotland, and to honour the memory of a former colleague, Stuart MacDonald, who lived with motor neuron disease (MND).

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

A woman from the Scottish Borders is demanding change to Scotland’s home adaptations system after being forced to wait more than a year for essential work - despite the average life expectancy following a diagnosis of motor neuron disease (MND) being just 18 months.

“Until you see it firsthand, you’ll never understand how horrific it is.”

East Lothian business announces charity partnership with MND Scotland after losing “incredible” Dad to MND

Before you go

Please consider donating to help make time count for people affected by MND. 

We are appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND.