News Archive - Page 3 of 61

“People making home modifications often have time to wait. People with MND don’t.”

Lisa McDonald, from Edinburgh, has spoken out about the delays and system failures that left her partner, Billy, unable to leave the house during the final stages of his life.

Guidance for Occupational Therapists to support people living with a terminal illness

The practice note, developed by MND Scotland, the Royal College of Occupational Therapists, consultants and neurology occupational therapists, Association of Local Authority Chief Housing Officers (ALACHO), and Marie Curie, offers guidance for occupational therapists on supporting people living with terminal illnesses when they require housing adaptations.

Ayrshire man to run local marathon in honour of families affected by motor neuron disease (MND)

Twenty-five-year-old, Thomas Lindsay, from Ayrshire, is taking on an incredible marathon this weekend, running a round trip from Ayr to Troon beach. He is taking on the challenge to help raise important funds for MND Scotland in honour of family friends who have been affected by motor neuron disease (MND).

Statement – Assisted Dying Bill

Motor neuron disease (MND) is a terminal neurological illness with a life expectancy of just 18 months from diagnosis, so we understand a heightened level of interest with MND and the Assisted Dying for Terminally Ill Adults (Scotland) Bill.

Update on amantadine from MND-SMART trial

MND-SMART has announced the latest results of the third drug to be tested by the innovative clinical trial.

Registration for 2024/2025 Annual General Meeting (AGM) now open

MND Scotland members are invited to register for the 2024 / 2025 Annual General Meeting (AGM) which will take place via Zoom on Monday, 9 March.

Glasgow Business Owner Shares Emotional Tribute to Mother‑in‑Law who battled MND

Glasgow hairdresser and business owner, Jade Hayter, is sharing the story of her late mother‑in‑law, Margaret “Mags” McQuaid, to help raise awareness of the number of women affected by motor neuron disease (MND).

Support strategies could assist people living with MND in making decisions about their health.

In 2020 MND Scotland funded £153,000 towards a project that assessed the needs of people living with MND in making decisions related to their care. The project, carried out at the University of Edinburgh by Professor Sharon Abrahams and Dr Milena Contreras, found that those who have changes in cognition (thinking) benefit from having specific support strategies when making these decisions.

Celtic FC Foundation and MND Scotland Team Up For Jimmy Johnstone 20th Anniversary Event

On Bank Holiday Monday, 4 May 2026, MND Scotland and Celtic FC Foundation will host ‘Jinky’s Journey’ - a 7‑mile walk from Viewpark to Celtic Park celebrating the life and legacy of Celtic and Scotland legend, Jimmy Johnstone.

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