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“It’s not just about raising funds it’s about raising awareness so people can reach out and get support when they need it”

“MND doesn’t care which football team you support. It can affect every family, every background”
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News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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“It’s not just about raising funds it’s about raising awareness so people can reach out and get support when they need it”

Will Mackie, 44, is preparing for the challenge of a lifetime – an unsupported 3000-mile row from La Gomera, Canary Islands, to the Island of Antigua, Caribbean, as part of the World’s Toughest Row in December 2026.

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MND Scotland launches Manifesto ahead of 2026 election

Ahead of the Scottish Parliament Elections in May 2026, MND Scotland has appealed to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like motor neuron disease (MND).
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Celebrating Creativity and Courage: Steven Hart’s Journey with Motor Neuron Disease

Steven Hart, artist, screenwriter, and former Art and Design lecturer from Glasgow, has lived a life defined by creativity, resilience, and a passion for storytelling. In 2020, Steven, 69, was diagnosed with motor neuron disease (MND) – a progressive and incurable condition that affects the nervous system.
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Scientist, Research

NICE assessment of tofersen to begin in 2026

Tofersen will now be considered by the National Institute for Health and Care Excellence (NICE) to determine whether it can be provided by the NHS in England. 
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What was it like at this year’s MND Scotland LEARN events?

In this blog, we share quotes from attendees who kindly provided their thoughts on the significance and impact of this year's LEARN events.
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Running for Dad: Andrew McEwen’s Mission to Support Families Affected by MND

Every day, incredible supporters like Andrew McEwen take on fundraising challenges and contribute to MND Scotland’s vision of a world without motor neuron disease (MND).
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Pioneering MND Pledge launched by the Federation of Local Housing Associations in Renfrewshire and East Renfrewshire (FLAIR)

Six housing associations who make up FLAIR - Barrhead, Bridgewater, Ferguslie Park, Linstone, Paisley and Williamsburgh - have formally committed to enhancing their service provision for tenants and owners diagnosed with MND in their communities. On Tuesday 18th November, FLAIR launched the first-of-its-kind cross-association pledge to support the housing needs of people living with MND.
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From the Lab to the Finish Line: Aberdeen-Based Researcher is Running for MND Scotland

Hazel Allardyce, a Research Scientist at the University of Aberdeen, will take on the Fraserburgh Half Marathon on Sunday 16 November 2025, in support of MND Scotland and in honour of her uncle.
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A message to our supporters from Dr Jane Haley, interim CEO

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Trustee’s Week – Callum Paterson’s blog

In this blog, Interim Co-Chair for MND Scotland, Callum Paterson, shares his experiences of why he decided to become a Trustee, and reflects on some key highlights over the past six months.
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