Home > News > Page 3

News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

MIROCALS update – September 2024

09/09/2024

As we enter September 2024, the data from the MIROCALS clinical trial has still not been submitted to an academic journal for publication, which would make the data available for the public and researchers worldwide.

National Institute for Health and Care Excellence (NICE) Confirms Tofersen Drug Appraisal via STA Route

Professor Richard Ribchester’s Journey into Science and Motor Neuron Disease Research

MND Scotland Trustee, Professor Richard Ribchester tells us more about what fuelled his passion for science and how he became interested in motor neuron disease research.

Self-proclaimed ‘non-athlete’ training hard to represent MND Scotland at TCS London Marathon

Louise has already raised over £3,500 and is on her way to reaching her goal of £5,000.

MND charities update on MIROCALS data

We have alerted regulators about the imminent MIROCALS trial data release in a joint letter with MND Association and My Name’5 Doddie Foundation, seeking a meeting to discuss potential implications.

Tofersen receives positive opinion from European Medicines Agency Committee

A milestone for SOD1-MND care as the European Medicines Agency Committee recommends tofersen approval, 26 years since the last EU-approved MND treatment.

MND Scotland broadens Scientific Advisory Panel with five new members

The panel is responsible for peer reviewing research funding proposals and helping to set MND Scotland’s research strategy.

MND Scotland riluzole supply issues update

MND Scotland updates on the situation in Scotland regarding access to riluzole tablets.

My Name’5 Doddie Foundation grants £50,000 to help people with MND

The money will be distributed by MND Scotland as a one-off cost of living support payment up to the value of £350.

Registration for 2024 Annual General Meeting (AGM) now open

MND Scotland members are invited to register for our AGM which will take place via Teams on Monday, 29 January 2024.

I have MND

I am supporting someone

All events

Latest research updates

Our latest news

What’s new?