MND Scotland – Interim Financial Update – Year Ended 31 March 2026

At our AGM earlier this year, we promised our members that we would keep them updated on our financial position so, as our 2025/26 financial year ended on 31 March, we are providing an interim financial update. Our conclusions are based on our end of year management accounts, and preliminary analysis. They provide an overview of MND Scotland’s financial performance but are not yet verified by our auditors.

Since November 2025, MND Scotland has successfully balanced spend against income, after several years of consciously reducing our reserves. Thanks to our fantastic supporters, income (excluding legacies) for year ended 31/3/26 was 5% higher than the previous year, and we are very grateful for everyone’s support.

The charity carried out a restructure in the Autumn of 2025, and the impact of this was felt across the second half of the financial year. Staff costs were reduced and efficiency improvements mean that we are now operating with 20 staff (down from an average of 34 in 2024/25).

We are now balancing spend relative to income which, coupled with additional income from legacies, has allowed us to restore our reserves position about 12 months earlier than anticipated.

Research commitments have been maintained following one adjustment assisted by the MND Association, one of our co-funding partners.

Personalised support has been maintained and, in some areas, strengthened – our new National Support Advisor roles were launched as planned, with funding from The National Lottery in March.  Although grants to individuals were paused during the second half of the financial year, some of these are being reintroduced as of Summer 2026.

The organisation is now in a stable financial position, and our reserves position has been restored to within our reserves policy range, with sufficient liquidity.

We are now reviewing the expansion of our charitable provision and are currently recruiting people with lived experience of MND to a new advisory group to help make sure we direct our activities where they are needed/wanted most.

Underpinning our recovery has been key changes to our Board of Trustees and the infrastructure of our Board, including bringing in more finance, charity and MND knowledge and experience, which is providing us with a solid foundation to move forward with confidence.

Looking ahead, MND Scotland is comfortably ahead of the business plan prepared when the charity was restructured in Autumn 2025. Going forward we expect continued demand for our services, but we see opportunities to further develop and increase our charitable work supporting people with MND and the wider MND community, funding research, and advocating for improved statutory provision for people with MND. New initiatives in all these areas are already underway as of Summer 2026.

Summary

• Income (excluding legacies) was 5% higher in 2025/26 than the previous year, thanks to our amazing supporters.
• Liquidity is strong and we have restored our unrestricted reserves to within our policy level 12 months ahead of plan.
• Restructuring and efficiency savings have reduced costs and we are now balancing spend against income (excluding legacies).
• Personalised support has continued and some has been strengthened (e.g. National Support Advisor service), while some grants to individuals are being restored in Summer 2026.
• Current research commitments have continued, with 12 projects ongoing, while a new research competition, Ignite, is launching in August 2026.

Callum Paterson (Trustee Co-Chair)

Graham Binnie (Trustee Treasurer)

Jane Haley (Interim CEO)

Rod Ashley (Director of Finance)