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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

When pieces come together, progress is made: how terazosin moved from bench to clinical trial

20/08/2025

At MND Scotland, we know that investment in fundamental research is crucial in the hunt for potential MND therapies. Sometimes it takes a number of small discoveries to come together for progress to occur. A powerful example is our investment in early-stage research, which helped Professor Tom Gillingwater, at the University of Edinburgh, launch terazosin on its path to clinical trial.

Professor Richard Ribchester’s Journey into Science and Motor Neuron Disease Research

MND Scotland Trustee, Professor Richard Ribchester tells us more about what fuelled his passion for science and how he became interested in motor neuron disease research.

MND charities update on MIROCALS data

We have alerted regulators about the imminent MIROCALS trial data release in a joint letter with MND Association and My Name’5 Doddie Foundation, seeking a meeting to discuss potential implications.

Tofersen receives positive opinion from European Medicines Agency Committee

A milestone for SOD1-MND care as the European Medicines Agency Committee recommends tofersen approval, 26 years since the last EU-approved MND treatment.

MND Scotland broadens Scientific Advisory Panel with five new members

The panel is responsible for peer reviewing research funding proposals and helping to set MND Scotland’s research strategy.

MND Scotland riluzole supply issues update

MND Scotland updates on the situation in Scotland regarding access to riluzole tablets.

MND Scotland welcomes new PhD student to explore role of microglia

Ms Lara Nikel (University of Oxford) joins MND Scotland’s community of funded researchers, alongside Professor Kevin Talbot and Dr Björn Vahsen.

MND Scotland statement on riluzole supplies

MND Scotland addresses a UK-wide shortage of riluzole tablets.

New documentary highlights pioneering scientific research into new targets for treatment of motor neuron disease

The documentary follows a key discovery made by researchers at University College London.

MND Scotland funds research to understand how families affected by genetic forms of MND use reproductive services

MND Scotland’s community of funded researchers welcomes Dr Alisdair McNeill and Shanice Allen (University of Sheffield).

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