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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

Biomarkers blog from Rob Layfield

29/05/2025

Professor Rob Layfield is an experienced motor neuron disease (MND) researcher and has been studying mechanisms involved in neurodegeneration for over 30 years. Rob and his lab have received funding from multiple agencies and charities to further their research into MND, looking at changes in proteins and the effect which this has on other cell processes, helping to move our understanding of MND forward.

Telehealth in MND (TiM) project delivers tool for supporting care for people with MND

An MND Scotland funded research project awarded to the University of Sheffield has helped develop a new tool for supporting care for people with MND.

MND-SMART update on amantadine

Following a review of stage 1 interim analysis data for amantadine, it has been decided that amantadine will continue to be evaluated as part of the MND-SMART trial.

What did attendees think of the LEARN local events?

To round up the local events our Research Lead, Paul Jensen, has brought together some quotes from attendees, who kindly shared with us their thoughts on what the events meant to them.

Statement on Assisted Dying from MND Scotland CEO, Rachel Maitland

The topic of assisted dying is receiving a significant amount of media attention due to legislation currently before both the UK and Scottish Parliaments.

MND Scotland project highlights need for individualised support for those caring for loved ones with MND

The project, carried out at the University of East Anglia by Professor Eneida Mioshi and Dr Polly Trucco, aimed to identify key factors influencing anticipatory grief to better support unpaid family carers and inform future interventions and research.

Join us at CORE – a full day event for people affected by MND and researchers

MND Scotland and My Name’5 Doddie Foundation are teaming up to host a day-long event for people in Scotland affected by MND and MND researchers.

NICE decision on tofersen welcomed following successful MND Association campaign

We welcome the announcement this morning from NICE that they will now appraise the drug tofersen via the Highly Specialised Technologies (HST) route.

Registration for 2023/2024 Annual General Meeting (AGM) now open

MND Scotland members are invited to register for our reconvened AGM which will take place via Zoom on Tuesday, 14 January 2025.

MND Scotland receives £25,000 boost from Apache

People in Scotland affected by motor neuron disease (MND) are set to benefit from a generous £25,000 donation from Apache North Sea.

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