News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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The grant review process; perspective of an Early Career Researcher

Dr Hannah Smith, a postdoctoral motor neuron disease (MND) researcher at the University of Edinburgh, has been an observatory, non-voting member involved in MND Scotland’s grant reviews since January 2024.

MND Scotland launches network to connect people with MND and researchers

Ahead of Global MND Awareness Day on Friday, 21 June, MND Scotland has launched a network of events to bring together researchers and people with, and affected by, motor neuron disease.

Global MND Awareness Day – 10 years on from the Ice Bucket Challenge

MND Scotland is marking Global MND Awareness Day on Friday, 21 June by looking back at the ice bucket challenge.

Alison shares her story this Carer’s Week

Alison Barry made the decision to bring her partner, John Sharkey, home from hospital so she could care for him. Read more of her story here.

Remembering Rob Burrow CBE

Everyone at MND Scotland is deeply saddened to hear that English rugby star, Rob Burrow CBE, has died aged 41 from motor neuron disease (MND). 

Clinical Academic Fellowship Announced for MND Research

MND Scotland and the Scottish Government’s Chief Scientist Office have appointed a three-year Clinical Academic Fellow to investigate potential causes of, and therapies for, motor neuron disease (MND).

Parliamentary reception highlights need for better social care for people with MND

New researcher joins MND Pre-Fellowship scheme with project focused on biomarkers

A new research project has launched as part of the Pre-Fellowship scheme to fund MND research leaders of the future.  

MND charities update on MIROCALS

In February, the three main MND charities shared an update that stated we had written a joint letter to regulators alerting them to the imminent publication of the data.