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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

MND Scotland project highlights need for individualised support for those caring for loved ones with MND

27/11/2024

The project, carried out at the University of East Anglia by Professor Eneida Mioshi and Dr Polly Trucco, aimed to identify key factors influencing anticipatory grief to better support unpaid family carers and inform future interventions and research.

Self-proclaimed ‘non-athlete’ training hard to represent MND Scotland at TCS London Marathon

Louise has already raised over £3,500 and is on her way to reaching her goal of £5,000.

MND charities update on MIROCALS data

We have alerted regulators about the imminent MIROCALS trial data release in a joint letter with MND Association and My Name’5 Doddie Foundation, seeking a meeting to discuss potential implications.

Tofersen receives positive opinion from European Medicines Agency Committee

A milestone for SOD1-MND care as the European Medicines Agency Committee recommends tofersen approval, 26 years since the last EU-approved MND treatment.

MND Scotland broadens Scientific Advisory Panel with five new members

The panel is responsible for peer reviewing research funding proposals and helping to set MND Scotland’s research strategy.

MND Scotland riluzole supply issues update

MND Scotland updates on the situation in Scotland regarding access to riluzole tablets.

My Name’5 Doddie Foundation grants £50,000 to help people with MND

The money will be distributed by MND Scotland as a one-off cost of living support payment up to the value of £350.

Registration for 2024 Annual General Meeting (AGM) now open

MND Scotland members are invited to register for our AGM which will take place via Teams on Monday, 29 January 2024.

Charities working together – next steps

Over 2024, we will continue to collaborate with MND Association and My Name'5 Doddie Foundation to focus on delivering proven treatments to people with MND as soon as practically possible.

MND Scotland welcomes new PhD student to explore role of microglia

Ms Lara Nikel (University of Oxford) joins MND Scotland’s community of funded researchers, alongside Professor Kevin Talbot and Dr Björn Vahsen.

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