News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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NICE decision on tofersen welcomed following successful MND Association campaign

We welcome the announcement this morning from NICE that they will now appraise the drug tofersen via the Highly Specialised Technologies (HST) route.

Registration for 2023/2024 Annual General Meeting (AGM) now open

MND Scotland members are invited to register for our reconvened AGM which will take place via Zoom on Tuesday, 14 January 2025.

MND Scotland receives £25,000 boost from Apache

People in Scotland affected by motor neuron disease (MND) are set to benefit from a generous £25,000 donation from Apache North Sea. 

MND Scotland patron, Her Royal Highness, The Princess Royal, visits charity supporters in Glasgow

Her Royal Highness, the Princess Royal, visited MND Scotland in Glasgow on Tuesday, 12 November, to meet the charity’s supporters and people with motor neuron disease (MND).  

Dundee drag queen takes on London marathon for MND Scotland

Dundee-born and raised drag queen, Raspberry will take on the prestigious TCS London Marathon in April 2025 to help raise vital funds and awareness for MND Scotland.   

Brave woman completes Edinburgh Kiltwalk just months after losing husband to motor neuron disease

A determined local woman successfully took part in this year’s Edinburgh Kiltwalk to raise vital funds for MND Scotland in memory of her late husband, who tragically lost his battle with motor neuron disease earlier this year.

Local supporter organises charity afternoon tea in memory of beloved mother, raising over £4000 for MND Scotland

Sharon Watson, 59, from Annan, Dumfries and Galloway, recently organised a heartfelt charity afternoon tea with the support of family and friends in memory of mum, Phyllis Shaw, raising over £4000 of vital funds for MND Scotland.  

Pushing the boat out for motor neuron disease – inspired by rugby legend Kevin Sinfield CBE, supporter completes seven half marathons to raise funds for MND Scotland

Shetland Islands local, Jeff Dobson has completed the incredible challenge of running seven marathons in seven days, in support of his father who is living with motor neuron disease (MND).  

MND Scotland supporter takes on Everest Base Camp Trek in memory of friend

Mother of two, Kelly Huxtable, 51, from South Ayrshire, is preparing to embark on an extraordinary journey to Everest Base Camp on 30 November 2024 to honour the memory of her friend, Elizabeth Casagranda (‘Betty’ to those close to her), who bravely fought against motor neuron disease (MND), and to help raise important funds for MND Scotland.