Grants and Guidelines
From 1 June 2025 our grants are changing.
Due to ongoing financial pressures, in response to rising demand and limited funding across the charity sector, we have made some changes to how we provide direct financial support to people living with MND and their carers.
Please see below for more information on the Making Time Count grant, available to support people with MND, their carers and family members.
If you have any questions about our grants, please contact the support team on support@mndscotland.org.uk / 0141 332 3903.
Making Time Count Grant
Following a financial review of our grants, we have taken the decision to combine our previous grants into one simplified wellbeing grant – Making Time Count Grant – to help us continue supporting people with MND, their carers and family members in a sustainable and consistent way.
The Making Time Count Grant is MND Scotland’s wellbeing grant, created to support people living with MND, as well as their carers and family members.
From June 2025, we have introduced a needs-based approach, meaning that the amount awarded may vary depending on individual circumstances. This allows us to prioritise those with greater financial pressures, while still ensuring that everyone affected by MND can access financial support.
The Making Time Count Grant will come into effect on 1 June 2025 and will be funded by MND Scotland and the My Name’5 Doddie Foundation.
We understand that every situation is different. Our aim is to offer support that is tailored to individual need.
Our grants can help ease the pressure you may be under and help you to make time count with the ones you love.
Time for You Grant
Purpose: To improve your wellbeing by accessing services that can enhance your quality of life.
Details: Provides up to £500 for services such as acupuncture, aromatherapy, massage, and more traditional self-care treatments like hairdressing or podiatry.
Usage: The grant is available to anyone diagnosed with MND, to make these beneficial services more accessible to those who may face financial barriers to services that improve wellbeing.
Carers Grant
Purpose: The Carers Grant is specifically designed to support those who are caring for someone with MND by providing financial assistance up to £500.
Break Away from Routine: The grant can help carers take a much-needed break from their daily caregiving responsibilities. This might include funding for short breaks, leisure activities, or simply time to relax.
Access to Services: Carers can use the grant to access services that improve their own wellbeing. This could cover costs for therapies such as massage, or therapies that help manage stress and enhance quality of life.
Details: Up to £500 can be used to help carers to take a break and focus on their wellbeing.
Continued Support: If the person with MND has passed away, carers can still access the grant up to six months post bereavement to help support them during this challenging period.
MND Scotland EAA Grant Guidelines
The Equipment and Adaptations Grant (EAA Grant) provided by MND Scotland offers significant support to individuals affected by motor neuron disease (MND) who require specialised equipment and home adaptations.
Here is a clear breakdown of the guidelines for this grant:
Funding Amount
Up to £1,500 is available for equipment and adaptations specifically designed for individuals with a physical disability.
Eligible Expenses
This funding can help to cover the cost required by a homeowner for several types of home modifications, such as:
- Converting a bathroom to a wet room.
- Converting a downstairs room to a bedroom.
- Contributing towards the cost of installing a stair lift.
- These adaptations are often part of expenses primarily covered by the local authority under the 2010 “Scheme of Assistance” (Section 72 Statement).
Role of Local Authorities
If a local authority does not cover these costs due to delays or budget constraints, applicants are required to engage MND Scotland’s advice and support service to address the issue with the relevant department. Without this engagement with our advice and support service, a grant will not be awarded.
Advice and Support Service Interaction
If the local authority response to the advice and support service in unsuccessful and proceeding with MND Scotland funding is in the client’s best interests, the client may submit an application. This application must include two estimates from qualified trades people for any building works or adaptations.
Exceptions
Exceptions may be considered based on individual circumstances, such as geographic location and available support networks.
Documentation and receipts
For any grant amount over £500, recipients must provide receipts. Failure to produce receipts may result in future grants being rejected.
Receipts can be sent to grants@mndscotland.org.uk
Additional Equipment
The grant may also be used to purchase specialised equipment if such equipment is not provided by local authorities, the health board, or MND Scotland’s equipment service.
Restrictions
Grants will not be awarded if the required equipment can or should be provided by a statutory source or can be provided by MND Scotland’s equipment service.
Safety Confirmation
For equipment not provided by a statutory service, supporting evidence must include confirmation from a health professional that the equipment is safe for use. If safety cannot be confirmed, the grant will not be approved.
Multiple Applications
Applicants can make more than one application to the fund within a year, but the total amount granted is capped at £1,500 over a rolling 12-month period.
This grant is designed to provide critical support that will enhance quality of life and independence by ensuring that necessary adaptations and equipment are accessible to those affected by MND.
General Guidelines for Grant Applications
- Maximum Amount: Applicants can request up to £1500. We aim to assist as many individuals as possible; please request only the amount you need.
- Award Criteria: Item must not be available from a statutory source or from MND Scotland equipment service. Grant amounts may vary based on the assessed need. All applications are subject to review and funding is not guaranteed.
- Renewal Policy: Our grants are administered on a 12-month rolling period, ensuring that financial support is consistently available throughout the year.
How to Apply
To access any of our grants, please contact our support team directly.
By Phone: Call our support line to speak directly with one of our team members. They will discuss you needs and refer you to one of our Support Team Advisors.
0141 332 3903
By Email: You can also reach out to us through our designated support inbox. A team member will respond to discuss your needs. Please email –
support@mndscotland.org.uk
Or you can fill in this form to let us know you would like to speak to our welfare and benefits advisor about our grants or other financial support.
Please note: All questions marked with an asterisk (*) must be answered before submitting your application.
Support Services Referral
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