Grants and Guidelines
From 1 June 2025 our grants are changing.
Due to ongoing financial pressures, in response to rising demand and limited funding across the charity sector, we have made some changes to how we provide direct financial support to people living with MND and their carers.
Please see below for more information on the Making Time Count grant, available to support people with MND, their carers and family members.
If you have any questions about our grants, please contact the support team on support@mndscotland.org.uk / 0141 332 3903.
Making Time Count Grant
Following a financial review of our grants, we have taken the decision to combine our previous grants into one simplified wellbeing grant – Making Time Count Grant – to help us continue supporting people with MND, their carers and family members in a sustainable and consistent way.
The Making Time Count Grant is MND Scotland’s wellbeing grant, created to support people living with MND, as well as their carers and family members.
From June 2025, we have introduced a needs-based approach, meaning that the amount awarded may vary depending on individual circumstances. This allows us to prioritise those with greater financial pressures, while still ensuring that everyone affected by MND can access financial support.
The Making Time Count Grant will come into effect on 1 June 2025 and will be funded by MND Scotland and the My Name’5 Doddie Foundation.
We understand that every situation is different. Our aim is to offer support that is tailored to individual need.
Our grants can help ease the pressure you may be under and help you to make time count with the ones you love.
Time for You Grant
Purpose: To improve your wellbeing by accessing services that can enhance your quality of life.
Details: Provides up to £500 for services such as acupuncture, aromatherapy, massage, and more traditional self-care treatments like hairdressing or podiatry.
Usage: The grant is available to anyone diagnosed with MND, to make these beneficial services more accessible to those who may face financial barriers to services that improve wellbeing.
Carers Grant
Purpose: The Carers Grant is specifically designed to support those who are caring for someone with MND by providing financial assistance up to £500.
Break Away from Routine: The grant can help carers take a much-needed break from their daily caregiving responsibilities. This might include funding for short breaks, leisure activities, or simply time to relax.
Access to Services: Carers can use the grant to access services that improve their own wellbeing. This could cover costs for therapies such as massage, or therapies that help manage stress and enhance quality of life.
Details: Up to £500 can be used to help carers to take a break and focus on their wellbeing.
Continued Support: If the person with MND has passed away, carers can still access the grant up to six months post bereavement to help support them during this challenging period.
MND Scotland EAA Grant Guidelines
The Equipment and Adaptations Grant (EAA Grant) provides vital support to individuals affected by motor neuron disease (MND), helping to fund specialised equipment and essential home adaptations that promote independence and improve quality of life.
Here is a clear breakdown of the guidelines for this grant:
Funding Overview
- Maximum Grant Amount: Up to £1,500 per applicant over a rolling 12-month period.
- Multiple Applications: Permitted within the year, but total funding must not exceed £1,500.
Eligibility Criteria
Referral and Engagement
Applications must be submitted via:
- Self-referral
- Referral from a Clinical Nurse Specialist (CNS)
The applicant must be actively engaging with an MND Scotland Support Team Advisor.
Applications will not be accepted from individuals who are not engaging with the support service.
Eligible Expenses
- Converting a bathroom to a wet room.
- Converting a downstairs room to a bedroom.
- Contributing towards the cost of installing a stair lift.
- Purchasing specialised equipment not available from statutory sources.
Statutory Equipment
If the item is considered a statutory provision:
- It must be discussed with the relevant local authority or health board.
- The reason for non-provision must be clearly documented.
- This will be challenged by the Support Team Advisor and escalated to the Policy & Campaigns team if necessary.
Application Requirements
Documentation
- Two estimates from qualified traders are required for building works or adaptations.
- Receipts must be provided for any grant amount over £500.
- Failure to provide receipts may result in future applications being rejected.
Safety and Suitability
- A letter of support from a healthcare professional or trained assessor is required, confirming the item is safe for use.
- If safety cannot be confirmed, the grant will not be approved.
Restrictions and Exceptions
Items Not Eligible
- Items deemed unsuitable.
- Used goods that have not been assessed.
- Items purchased before applying for the grant (retrospective purchases).
Exceptions
May be considered based on individual circumstances, such as geographic location or lack of local support.
Statutory Source Restrictions
Grants will not be awarded for items that can or should be provided by a statutory source.
Support Team Advisor Requirement
If a local authority does not cover costs due to delays or budget constraints:
- Applicants must engage with an MND Scotland Support Team Advisor.
- Without this engagement, a grant will not be awarded.
- If the Support Team Advisor’s response is unfavourable, and funding is deemed in the client’s best interest, an application may proceed.
How to Apply
To access any of our grants, please contact our support team directly.
By Phone: Call our support line to speak directly with one of our team members. They will discuss you needs and refer you to one of our Support Team Advisors.
0141 332 3903
By Email: You can also reach out to us through our designated support inbox. A team member will respond to discuss your needs. Please email –
support@mndscotland.org.uk
Or you can fill in this form to let us know you would like to speak to our welfare and benefits advisor about our grants or other financial support.
Please note: All questions marked with an asterisk (*) must be answered before submitting your application.
Support Services Referral
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