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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

13/04/2026

An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.

Response to Durham University research into multiple rugby concussions and neurodegenerative diseases

Researchers at Durham University recently published (17 July 2024) a study on the difference in the levels of proteins associated with neurodegenerative disease in retired rugby players with a history of concussions, and athletes without a concussion history.

MND Scotland Trustee, Professor Richard Ribchester on the progress of MND research

To mark National Research Appreciation Day, our trustee, Professor Richard Ribchester, shares his thoughts on the progress and future of motor neuron disease (MND) research.

Artists garden blossoms with generosity by supporting MND Scotland

Nestled directly outside their home, Susheila and James have transformed one acre of land into a beautiful open greenspace for visitors all over Scotland to reconnect with nature and contribute to worthwhile causes.

New research project could improve MND diagnosis, monitoring and research

The new research project, run by Professor Roger Whittaker, a consultant clinical neurophysiologist at the University of Newcastle, will investigate whether it is possible to lay the foundations for a non-invasive investigation using standard hospital MRI scanners.

The grant review process; perspective of an Early Career Researcher

Dr Hannah Smith, a postdoctoral motor neuron disease (MND) researcher at the University of Edinburgh, has been an observatory, non-voting member involved in MND Scotland’s grant reviews since January 2024.

MND Scotland launches network to connect people with MND and researchers

Ahead of Global MND Awareness Day on Friday, 21 June, MND Scotland has launched a network of events to bring together researchers and people with, and affected by, motor neuron disease.

Global MND Awareness Day – 10 years on from the Ice Bucket Challenge

MND Scotland is marking Global MND Awareness Day on Friday, 21 June by looking back at the ice bucket challenge.

Alison shares her story this Carer’s Week

Alison Barry made the decision to bring her partner, John Sharkey, home from hospital so she could care for him. Read more of her story here.

Remembering Rob Burrow CBE

Everyone at MND Scotland is deeply saddened to hear that English rugby star, Rob Burrow CBE, has died aged 41 from motor neuron disease (MND).

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