Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​


New researcher joins MND Pre-Fellowship scheme with project focused on biomarkers

A new research project has launched as part of the Pre-Fellowship scheme to fund MND research leaders of the future.  

MND charities update on MIROCALS

In February, the three main MND charities shared an update that stated we had written a joint letter to regulators alerting them to the imminent publication of the data.  

MND charities respond to TUDCA trial results

Phase 3 clinical trial of tauroursodeoxycholic acid (TUDCA) fails to meet primary aim of reducing the progression of MND.

National Institute for Health and Care Excellence (NICE) Confirms Tofersen Drug Appraisal via STA Route

Professor Richard Ribchester’s Journey into Science and Motor Neuron Disease Research

MND Scotland Trustee, Professor Richard Ribchester tells us more about what fuelled his passion for science and how he became interested in motor neuron disease research.
MND Scotland Research

MND charities update on MIROCALS data

We have alerted regulators about the imminent MIROCALS trial data release in a joint letter with MND Association and My Name’5 Doddie Foundation, seeking a meeting to discuss potential implications.

Tofersen receives positive opinion from European Medicines Agency Committee

A milestone for SOD1-MND care as the European Medicines Agency Committee recommends tofersen approval, 26 years since the last EU-approved MND treatment.

MND Scotland broadens Scientific Advisory Panel with five new members

The panel is responsible for peer reviewing research funding proposals and helping to set MND Scotland’s research strategy. 

MND Scotland riluzole supply issues update

MND Scotland updates on the situation in Scotland regarding access to riluzole tablets.