News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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Update on Ellorarxine

During 2024, encouraging research was published by the Universities of Durham and Aberdeen that demonstrated that a new drug, Ellorarxine, was able to reduce the death of rodent neurons grown in a dish, including those containing an alteration found in some forms of MND. 

MND-SMART update on amantadine

Following a review of stage 1 interim analysis data for amantadine, it has been decided that amantadine will continue to be evaluated as part of the MND-SMART trial. 

What did attendees think of the LEARN local events?

To round up the local events our Research Lead, Paul Jensen, has brought together some quotes from attendees, who kindly shared with us their thoughts on what the events meant to them. 

MND Scotland project highlights need for individualised support for those caring for loved ones with MND

The project, carried out at the University of East Anglia by Professor Eneida Mioshi and Dr Polly Trucco, aimed to identify key factors influencing anticipatory grief to better support unpaid family carers and inform future interventions and research. 

Join us at CORE – a full day event for people affected by MND and researchers

MND Scotland and My Name’5 Doddie Foundation are teaming up to host a day-long event for people in Scotland affected by MND and MND researchers.

NICE decision on tofersen welcomed following successful MND Association campaign

We welcome the announcement this morning from NICE that they will now appraise the drug tofersen via the Highly Specialised Technologies (HST) route.

MND Scotland and Anatomical Society funded project to investigate ways to try slow disease progression by helping motor neurons regrow

Dr Murray and her PhD student, Ernie Ho, are testing the theory that, if motor neurons can be stimulated to regrow, it could help slow the progression of motor neuron disease (MND).

Publication of MND-SMART results in The Lancet Neurology

We welcome the timely publication of the MND-SMART trial results on memantine and trazodone in The Lancet Neurology. 

Gordon Aikman Scholarship develops MND-specific Future Care Plan

Funding that honours the late motor neuron disease (MND) campaigner Gordon Aikman has delivered an MND-specific future care plan.