News Archive - MND Scotland

Insights into animal models of MND and why they matter

Why research uses animal models and how they’re lighting the way - A Q&A Blog by Dr Chris Henstridge.

Lived Experience and Researcher Network (LEARN) 2025 announcement

MND Scotland’s LEARN local events are returning in 2025, with an additional event in the Scottish Highlands.

MND-SMART trial begins testing fourth drug with introduction of tacrolimus

The MND-SMART clinical trial has launched a fourth investigational arm to test tacrolimus as a potential treatment for motor neuron disease (MND).

Biomarkers blog from Rob Layfield

Professor Rob Layfield is an experienced motor neuron disease (MND) researcher and has been studying mechanisms involved in neurodegeneration for over 30 years. Rob and his lab have received funding from multiple agencies and charities to further their research into MND, looking at changes in proteins and the effect which this has on other cell processes, helping to move our understanding of MND forward.

Response to Clinical Studies Group (CSG) statement on MIROCALS

Following the publication of the MIROCALS trial data in the Lancet on Friday, 9 May, MND Scotland welcomes the prompt response from the Clinical Studies Group (CSG).

MND Scotland welcomes publication of data from the MIROCALS trial

MND Scotland welcomes the publication of the MIROCALS trial in The Lancet today. We have been campaigning alongside the MND Association and My Name’5 Doddie Foundation for the publication of this important trial and are now keen to ensure we understand the implications of the data so we can provide the right information to patients and their families.

Shining a Spotlight on UK Innovation in MND Research at the BNA Festival of Neuroscience 2025

MND Scotland is proud to be partnering with the MND Association and My Name’5 Doddie Foundation to support an exciting symposium today (30 April 2025) at the British Neuroscience Association (BNA) Festival of Neuroscience 2025.

What attendees learned at the Community of Research and lived Experience (CORE) event

On 3 March 2025, MND Scotland and My Name’s Doddie Foundation welcomed people with and affected by MND from Scotland, and MND researchers from across the UK, to Dynamic Earth in Edinburgh for our inaugural CORE event. It was a wonderful experience which provided a platform for the MND community to come together and share their knowledge, opinions and experience on MND research through our shared goal of a world without MND.

Further update on ellorarxine

There has been ongoing coverage in the UK media of an early-stage compound, ellorarxine, that targets the retinoic acid receptor (RAR).

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Appreciating research: reflections from lay reviewers and technology users