News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

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Research highlights the role of stathmin-2 and stress in motor neuron survival in MND

Dr Tatyana Shelkovnikova, University of Sheffield investigates a new way of protecting motor neurons in people with motor neuron disease (MND), thanks to a grant of £84,059 from MND Scotland in 2022.

MND Scotland’s Lived Experience and Researcher Network (LEARN) local events will return in Autumn 2026.

This year we will be returning to Aberdeen, Dingwall, Dundee, Edinburgh, and Glasgow - with the addition of our first LEARN event in Dumfries to our event calendar.

New PhD Studentship: Exploring Gut Tissue Biomarkers for Earlier ALS Diagnosis

MND Scotland has partnered with LifeArc, to fund a new PhD Studentship. Dr Marta Vallejo at Heriot-Watt University will receive almost £100,000 to explore whether changes in gut tissue can provide early warning signs of motor neuron disease (MND).

Update on amantadine from MND-SMART trial

MND-SMART has announced the latest results of the third drug to be tested by the innovative clinical trial.

Support strategies could assist people living with MND in making decisions about their health.

In 2020 MND Scotland funded £153,000 towards a project that assessed the needs of people living with MND in making decisions related to their care. The project, carried out at the University of Edinburgh by Professor Sharon Abrahams and Dr Milena Contreras, found that those who have changes in cognition (thinking) benefit from having specific support strategies when making these decisions.

MND Scotland and Scottish Government fund project to improve the delivery of environmental controls for people with MND

Dr Megan Bolton, from NHS Greater Glasgow and Clyde, has received a Gordon Aikman Scholarship, funded by MND Scotland and the Scottish Government. Dr Bolton will receive £16,000 to fund her research into the delivery of environmental controls across Scotland.
Scientist, Research

NICE assessment of tofersen to begin in 2026

Tofersen will now be considered by the National Institute for Health and Care Excellence (NICE) to determine whether it can be provided by the NHS in England. 

What was it like at this year’s MND Scotland LEARN events?

In this blog, we share quotes from attendees who kindly provided their thoughts on the significance and impact of this year's LEARN events.

LEARN 2025 – Andrew’s blog for MND Scotland

In this blog, Andrew Bethell, discusses what he enjoys most about his role as a MND Advanced Clinical Nurse Specialist for NHS Highland.    

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