News

Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.​

Category
Scientist, Research

NICE assessment of tofersen to being in 2026

Tofersen will now be considered by the National Institute for Health and Care Excellence (NICE) to determine whether it can be provided by the NHS in England. 

What was it like at this year’s MND Scotland LEARN events?

In this blog, we share quotes from attendees who kindly provided their thoughts on the significance and impact of this year's LEARN events.

LEARN 2025 – Andrew’s blog for MND Scotland

In this blog, Andrew Bethell, discusses what he enjoys most about his role as a MND Advanced Clinical Nurse Specialist for NHS Highland.    

LEARN 2025 – Dr Caroline McHutchison’s blog for MND Scotland

In this blog , Dr Caroline McHutchison from the University of Stirling discusses her motivations for undertaking MND research to understand cognitive and behavioural changes in MND. Caroline also recently presented at the LEARN event in Glasgow at Celtic Park on Thursday, 11 September 2025.

LEARN 2025 – Gemma Catton’s blog for MND Scotland

In this blog, Gemma Catton shares her connection to MND, her mother’s journey with the disease, and the importance of MND researchers engaging with individuals living with and affected by the disease during MND Scotland’s LEARN events across Scotland.

LEARN 2025 – Lucy’s blog for MND Scotland

In this blog for MND Scotland, Lucy Lintott-Smith shares her experiences of living with MND and discusses the LEARN (Lived Experience and Researcher Network) events hosted by MND Scotland, which will take place across the country this year. 

Project exploring traumatic brain injury and risk of developing MND publishes results

Researchers at the University of Glasgow have published a large-scale population study examining the relationship between traumatic brain injury and the risk of developing motor neuron disease (MND).  

LEARN 2025 – Alan Ogg’s blog for MND Scotland

In this blog for MND Scotland, Alan Ogg discusses his connection to motor neuron disease (MND). Alan’s wife, Liz, bravely battled the disease.  Alan talks about the impact MND has had, and why it was important for him to attend MND Scotland’s LEARN (Lived Experience and Researcher Network) event at Celtic Park, Glasgow. 

Scotland’s leading motor neuron disease charity to host second research event in Edinburgh

MND Scotland is hosting a free, interactive, and educational local research event in Edinburgh at Tynecastle Park on Tuesday 7 October 2025, from 2pm to 5pm, thanks to support from Heart of Midlothian F.C.