Ahead of the Scottish Parliament election this Spring, MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).
MND Scotland is calling on the next government to deliver:
1. Invested in, and fast-tracked, housing and adaptations;
2. Fast- tracked social care;
3. Increased, targeted funding for neuro-progressive conditions.
To support our campaign, over the coming weeks we will share the personal stories of people with experience of issues around social care, housing or research.
You can also support our Manifesto by spreading the word on social media.
Our Open Letter to the First Minister
In Scotland right now, 481 people are living with Motor Neuron Disease (MND). Between now and 2031, we estimate another 1,000 more people will be diagnosed across the country. There is no cure. The average life expectancy is just 18 months from the point of being diagnosed.
MND Scotland is appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND. But we need your support.
Our policy news
“It May Be a Job to Them, But It’s My Life” – Nicola’s story
Nicola McFarlane was diagnosed with motor neuron disease (MND) in May 2023 when she was forty-six years old. She worked full-time, stayed fit and active, and lived an independent life.
“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research
An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.
“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease
A woman from the Scottish Borders is demanding change to Scotland’s home adaptations system after being forced to wait more than a year for essential work - despite the average life expectancy following a diagnosis of motor neuron disease (MND) being just 18 months.