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MND Scotland Policy Manifesto 2026

MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).

Ahead of the Scottish Parliament election this Spring, MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).

To support our calls, today we publish our Manifesto.

MND Scotland is calling on the next government to deliver:

1. Invested in, and fast-tracked, housing and adaptations;

2. Fast- tracked social care;

3. Increased, targeted funding for neuro-progressive conditions.

To support our campaign, over the coming weeks we will share the personal stories of people with experience of issues around social care, housing or research.

You can also support our Manifesto by spreading the word on social media.

Our Open Letter to the First Minister

In Scotland right now, 481 people are living with Motor Neuron Disease (MND). Between now and 2031, we estimate another 1,000 more people will be diagnosed across the country. There is no cure. The average life expectancy is just 18 months from the point of being diagnosed.

MND Scotland is appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND. But we need your support.

With the Scottish Parliament election just two weeks away, the main political parties have launched their Manifestos, setting out what they pledge to do if elected to govern.

With our key asks outlined above, we have reviewed each Manifesto to see what pledges could most benefit people affected by MND.We were pleased to see that the Manifestos published by all of the main political parties reflect a number of our asks, including commitments to review accessible housing; invest in services and ensure better pay for social care staff; better support unpaid carers; and advance understanding and knowledge of terminal illnesses.

We particularly welcome the SNP’s explicit mention of MND in their commitments for fast-tracking social care for people with MND, and investing in MND research. The language used directly reflects our manifesto, which was shared with all parties in January, and through work last year.

ON SCOTLAND’S SIDE: SNP Manifesto 2026k

“A HEALTHY SCOTLAND”: Motor Neurone Disease (MND)

“Our aim is to devise a long term plan to cluster in funding for research and development in rare, neuro-progressive conditions like MND. We will also seek to enable fast tracking of care packages for people who are diagnosed with MND”. (www.snp.org/manifesto)

We are committed to working with the next Scottish government to ensure the urgent statutory rights and needs of those with MND are met.

Our policy news

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

Nicola McFarlane was diagnosed with motor neuron disease (MND) in May 2023 when she was forty-six years old. She worked full-time, stayed fit and active, and lived an independent life.

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

A woman from the Scottish Borders is demanding change to Scotland’s home adaptations system after being forced to wait more than a year for essential work - despite the average life expectancy following a diagnosis of motor neuron disease (MND) being just 18 months.

SEE ALL NEWS

What your
donation can do

What could £10 support?

£10 could help us keep in touch with people with MND, provide information, and even arrange practical support to make living with MND easier.

What could £50 support?

£50 could help our Advocacy team to resolve issues many people with MND are experiencing, and take stress away from them and their family.

What could £100 support?

£100 could bolster our efforts to fund world-leading MND clinical trials which aim to develop new treatments to fight back against MND.

Donate by post

Please send a cheque payable to 'MND Scotland' to: MND Scotland, 6th Floor, Merchant Exchange, 20 Bell Street, Glasgow, G1 1LG.

Please include a note with your full name, address and details of your donation, so we can thank you.

Donate by phone

Call us on 0141 332 3903 to make your donation.

Please have your credit or debit card to hand.

Bank Transfer

You can transfer money straight from your bank account to ours or deposit the money at any Bank of Scotland branch.

Please contact us for bank details and a reference code.

Have a question? Contact us for more information.

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Our latest news

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MND Scotland Policy Manifesto 2026

Ahead of the Scottish Parliament election this Spring, MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).

To support our calls, today we publish our Manifesto.

MND Scotland is calling on the next government to deliver:

1. Invested in, and fast-tracked, housing and adaptations;

2. Fast- tracked social care;

3. Increased, targeted funding for neuro-progressive conditions.

To support our campaign, over the coming weeks we will share the personal stories of people with experience of issues around social care, housing or research.

You can also support our Manifesto by spreading the word on social media.

Our Open Letter to the First Minister

In Scotland right now, 481 people are living with Motor Neuron Disease (MND). Between now and 2031, we estimate another 1,000 more people will be diagnosed across the country. There is no cure. The average life expectancy is just 18 months from the point of being diagnosed.

MND Scotland is appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND. But we need your support.

With the Scottish Parliament election just two weeks away, the main political parties have launched their Manifestos, setting out what they pledge to do if elected to govern.

We particularly welcome the SNP’s explicit mention of MND in their commitments for fast-tracking social care for people with MND, and investing in MND research. The language used directly reflects our manifesto, which was shared with all parties in January, and through work last year.

ON SCOTLAND’S SIDE: SNP Manifesto 2026k

“A HEALTHY SCOTLAND”: Motor Neurone Disease (MND)

“Our aim is to devise a long term plan to cluster in funding for research and development in rare, neuro-progressive conditions like MND. We will also seek to enable fast tracking of care packages for people who are diagnosed with MND”. (www.snp.org/manifesto)

We are committed to working with the next Scottish government to ensure the urgent statutory rights and needs of those with MND are met.

Our policy news

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

Make a donation

What your
donation can do

What could £10 support?

What could £50 support?

What could £100 support?

Donate by post

Donate by phone

Bank Transfer

Before you go

I have MND

I am supporting someone

All events

Latest research updates

Our latest news

MND Scotland Policy Manifesto 2026

Ahead of the Scottish Parliament election this Spring, MND Scotland is calling on the next Government to deliver timely, fast-tracked support for everyone in Scotland living with motor neuron disease (MND).

To support our calls, today we publish our Manifesto.

MND Scotland is calling on the next government to deliver:

1. Invested in, and fast-tracked, housing and adaptations;

2. Fast- tracked social care;

3. Increased, targeted funding for neuro-progressive conditions.

To support our campaign, over the coming weeks we will share the personal stories of people with experience of issues around social care, housing or research.

You can also support our Manifesto by spreading the word on social media.

Our Open Letter to the First Minister

In Scotland right now, 481 people are living with Motor Neuron Disease (MND). Between now and 2031, we estimate another 1,000 more people will be diagnosed across the country. There is no cure. The average life expectancy is just 18 months from the point of being diagnosed.

MND Scotland is appealing to the next Scottish Government to legislate and recognise the urgent statutory rights and needs of those with terminal illnesses like MND. But we need your support.

With the Scottish Parliament election just two weeks away, the main political parties have launched their Manifestos, setting out what they pledge to do if elected to govern.

We particularly welcome the SNP’s explicit mention of MND in their commitments for fast-tracking social care for people with MND, and investing in MND research. The language used directly reflects our manifesto, which was shared with all parties in January, and through work last year.

ON SCOTLAND’S SIDE: SNP Manifesto 2026k

“A HEALTHY SCOTLAND”: Motor Neurone Disease (MND)

“Our aim is to devise a long term plan to cluster in funding for research and development in rare, neuro-progressive conditions like MND. We will also seek to enable fast tracking of care packages for people who are diagnosed with MND”. (www.snp.org/manifesto)

We are committed to working with the next Scottish government to ensure the urgent statutory rights and needs of those with MND are met.

Our policy news

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

Make a donation

What your donation can do

What could £10 support?

What could £50 support?

What could £100 support?

Donate by post

Donate by phone

Bank Transfer

Before you go

What your
donation can do