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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

LEARN 2026 – Claire’s blog for MND Scotland

25/08/2026

In this blog for MND Scotland, Claire Duffus, from Turriff, Aberdeenshire, discusses her connection to motor neuron disease (MND). Claire’s father, Alexander, bravely battled the disease, and she talks about the impact MND had, and why it was important for her to attend MND Scotland’s LEARN (Lived Experience and Researcher Network) event in Aberdeen.

“It May Be a Job to Them, But It’s My Life” – Nicola’s story

Nicola McFarlane was diagnosed with motor neuron disease (MND) in May 2023 when she was forty-six years old. She worked full-time, stayed fit and active, and lived an independent life.

MND Scotland Coffee Afternoon Events

MND Scotland is happy to announce that coffee afternoon events for the MND community will take place in Dundee and Glasgow in June 2026.

“He never let MND get him down, even when he knew what was coming.”

Zoe MacDonald, 18, from Oban, will take on an incredible 10,000 feet skydive challenge in St Andrews on 27 June 2026 in honour of her firefighter uncle, Brian MacDonald.

“I don’t want to see other people go through what we had to” Daughter who lost her mum to MND calls for more investment in MND research

An NHS physiotherapist who lost her mum to motor neuron disease (MND) is urging the government to increase investment into MND research.

Johnstone man takes on Dunoon Ultra in memory of colleague who lived with MND

Mark Bischuk, 55, from Renfrewshire, will take on the tenth anniversary Dunoon Ultra on 22 August 2026 in support of MND Scotland, and to honour the memory of a former colleague, Stuart MacDonald, who lived with motor neuron disease (MND).

“We Don’t Have a Year to Wait” Lynda’s Fight for Home Adaptations for People with Motor Neuron Disease

A woman from the Scottish Borders is demanding change to Scotland’s home adaptations system after being forced to wait more than a year for essential work - despite the average life expectancy following a diagnosis of motor neuron disease (MND) being just 18 months.

“Until you see it firsthand, you’ll never understand how horrific it is.”

East Lothian business announces charity partnership with MND Scotland after losing “incredible” Dad to MND

“People making home modifications often have time to wait. People with MND don’t.”

Lisa McDonald, from Edinburgh, has spoken out about the delays and system failures that left her partner, Billy, unable to leave the house during the final stages of his life.

Guidance for Occupational Therapists to support people living with a terminal illness

The practice note, developed by MND Scotland, the Royal College of Occupational Therapists, consultants and neurology occupational therapists, Association of Local Authority Chief Housing Officers (ALACHO), and Marie Curie, offers guidance for occupational therapists on supporting people living with terminal illnesses when they require housing adaptations.

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