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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

What attendees learned at the Community of Research and lived Experience (CORE) event

17/04/2025

On 3 March 2025, MND Scotland and My Name’s Doddie Foundation welcomed people with and affected by MND from Scotland, and MND researchers from across the UK, to Dynamic Earth in Edinburgh for our inaugural CORE event. It was a wonderful experience which provided a platform for the MND community to come together and share their knowledge, opinions and experience on MND research through our shared goal of a world without MND.

Coalition Outlines Strategy for Step Change in Motor Neuron Disease Research

The United to End MND coalition has identified a number of key areas to focus on to unlock the ring-fenced MND funding promised by Government

United to End MND Roundtable with Health and Social Care Secretary

A statement from the United to End MND coalition following the Roundtable with Health and Social Care Secretary Steve Barclay.

New scheme to fund MND research leaders of the future

Four new pre-fellowships are open to budding career researchers to help them continue a career in MND research thanks to funding and support from two MND charities.

MND Warrior Lucy Lintott Smith Awarded BEM

Lucy, who was diagnosed with MND in 2013 when she was just 19 years old, has been honoured with a British Empire Medal for her charitable work.

Renfrewshire Man Runs 500 Miles to Support People Affected by MND

Greg Lee has raised over £15,000 to support people affected by MND after completing the ambitious challenge of running 500 miles.

MND Scotland Funded Project Aims to Reduce Loss of Function in Motor Neurons

PhD Student, Brittany Ellis and supervisor Dr Tatyana Shelkovnikova, join our community of researchers to develop a method of alleviating and preventing damage to axons

United to End MND Funding Announcement

Statement from the United to End MND campaign regarding the UK government's announcement that it will accelerate funding for MND research to help find a cure.

MIROCALS trial publishes findings

A clinical trial investigating the protein molecule Interleukin-2 reports findings.

Response to Secretary of State Steve Barclay’s Comments

The following statement is from the MND charities and LifeArc on behalf of the United To End MND coalition which also includes people with MND, clinicians and researchers.

I have MND

I am supporting someone

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