Supporting each other
Feedback we received from our community identified the need for two support groups, one specifically for people diagnosed with MND and a separate group for family carers.
Each group is held monthly on Zoom and everyone is welcome.
Good to know
All-Scotland groups
Our two virtual groups support people diagnosed with MND with a separate group for family carers.
Leave when you want
Stay for the whole meeting or as long as you want – you won’t be judged for arriving late or leaving early.
No pressure to speak
Take part as much or as little as you want – you can just watch and listen if you wish to.
Up-to-date news
Learn the latest news about MND research and our services, and hear from guest speakers.
Knowledgeable members
Ask us anything you want and benefit from hearing the experiences of other people.
Everyone’s welcome
Our virtual group is available to people living with MND, their carers and family members.
How to join our online peer support group
To join one of our two online peer support groups, all you need to do is fill in the simple form below.
Everyone that sends a request to attend will then receive a welcome call from our wellbeing team. This is an opportunity to receive further information about the group you will attend. Once this call is completed, you are added to the group invitation list and will receive a link to join.
If anyone experiences difficulties joining their group, please contact us on 0141 332 3903 or support@mndscotland.org.uk.
How a group meeting works
Our online peer support groups are friendly, safe and supportive places for you to talk about what matters to you.
At each meeting, you can share as little or as much as you want. You don’t have to talk about anything you don’t want to. And some people attend a few times before they feel comfortable sharing.
Typically, one of our virtual support group meetings involves:
An MND Scotland representative introduces themselves, welcomes everyone and co-facilitates the meeting with another staff member. The additional staff member takes notes of queries raised by group members which need to be followed up after the meeting.
If a guest speaker has been invited to a meeting, they will give a talk and invite questions from members.
The facilitator provides the latest news about our services and other relevant developments.
Support group members are invited to ask any other questions they may have.
Support group members are given the opportunity to speak about their week and any issues relating to their MND or caring role that have come up during it. These issues are usually discussed by other group members and MND Scotland staff members.
At the end, the facilitator highlights any key points from the meeting, thanks everyone for attending and tells members about any guest speakers who will be attending the next meeting.
“ MND Scotland reached out and connected me with other people with MND through their virtual support group. It’s heart-warming to be able to speak to other people who live with MND and share experiences on how to get through this terrible experience. ”
— Robert Elliot.
How our online peer support groups may help you
Many people affected by MND find that joining a support group where they can meet other people with similar experiences can make them feel less isolated.
Attending one of our online support groups may also help you come to terms with what’s happening, overcome problems you’re facing and feel more positive about the future.
On top of this, you may learn how to access other sources of help, such as local support services, grants, counselling, self-help activities and bereavement support.
Support Services Referral
Please note: All questions marked with an asterisk (*) must be answered before submitting your application.
Other ways we can support you
Free counselling
We offer tailored counselling sessions to people living with MND and carers.
Specialist equipment
We gift and loan out a wide range of helpful equipment and communication aids.
Benefits advice
Our free benefits service can help you claim financial support you’re entitled to.
Grants for you
We offer a wide range of grants to help you live a good life and ease money worries.
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