We’re in your corner
From 1 July 2025 our advocacy service is changing.
We have made some changes in how we support people affected by motor neuron disease and their families.
Over the past few years the number of people using the advocacy service has steadily decreased. We’ve also heard from clients and staff that support could be more joined-up and flexible.
In response to feedback, we’re introducing a new role – a National Support Advisor – who will provide holistic, person-centred support. This means providing advice and guidance across a range of areas including welfare benefits, housing, health and social care, employment, and other issues that may arise as a consequence of receiving an MND diagnosis.
This change is part of a wider plan to strengthen our services and make sure that support is easier to access, more consistent, and better tailored to each person’s needs.
If you need help or have any questions, please get in touch with our team at support@mndscotland.org.uk – we’ll make sure you’re connected with the right person.
Thank you for your understanding as we make this transition.
Frequently asked questions
Why has the Advocacy Service ended?
Over the past few years, less and less people have been using our Advocacy Service. We’ve also been hearing from clients and staff that support could be more joined-up. Based on this, we’ve made the decision to move towards a more flexible, holistic approach.
This is part of a wider plan to strengthen the way we support people affected by MND – making it easier to get the right help, at the right time, from one person who understands the full picture.
What is the National Support Advisor role?
The National Support Advisor will be the single point of contact for a wide range of support needs. They’ll be able to help with everything from welfare benefits to housing, care and support at home and employment issues that can come with an MND diagnosis.
The aim is to make things simpler and more joined-up, so you don’t have to speak to multiple people or repeat your story.
I was already getting help from the Advocacy Service – what should I do?
If you were working with one of our Advocacy Workers and still need support please get in touch with us at support@mndscotland.org.uk and let us know how things are for you now. We’ll make sure a member of the team contacts you.
Can I still get help with things like housing or social care?
Yes, absolutely. The new role is designed to support you with multiple issues – from accessing care packages and adaptations to dealing with local authorities or health boards. We will offer information, guidance and signpost when required to offer the best support possible.
When will the new advisor start?
The new National Support Advisor will be in post soon. Until then, our Support Team is here and ready to help – contact us at support@mndscotland.org.uk and we’ll take it from there.
I’m not sure what kind of help I need – who should I contact?
You can email us at support@mndscotland.org.uk, and someone from the team will get back to you. Or call our support line on 0141 332 3309.
How we can help you
Our advocacy service is available to anyone affected by MND who lives in Scotland. You can speak to one of our advocacy workers face-to-face, on the phone, or through email, depending on your location.
An MND advocacy worker can help protect your rights, make sure your voice is heard and help you access equipment or technology you need.
Typically, our Advocacy Service supports people with MND and their carers in the following areas:
Accessing services from a local authority
Applying for free personal care
Appeals against life insurance and pension scheme decisions
Disputes with companies about household bills, insurance and other issues
Finding a care provider
Getting hold of equipment or technology
Securing necessary adaptations for a home
Moving to a more suitable home, including social housing
Problems experienced at work
Other issues that cause frustration and worry
Reasons for accessing our Advocacy Service
You may feel a little reluctant about using our Advocacy Service. Maybe because you feel your problem isn’t that big or someone else may need our help more.
If you feel this way, please still get in touch with us. We’d much prefer to assess a problem you’re facing than not hear about it at all. Plus, there are many benefits to using our Advocacy Service:
Helps to ensure you get the care and support you’re entitled to
Makes sure your voice is heard when decisions need to be made
Reduces the stress of having to deal with confusing, persistent or urgent issues
Allows you and your family to spend more quality time together
Provides reassurance that you’re backed by a committed and compassionate team
Support Services Referral
Please note: All questions marked with an asterisk (*) must be answered before submitting your application.
Other ways we can support you
Accessible holidays
Specialist holiday homes in stunning Scottish locations. Fully equipped to meet your needs.
Counselling for carers
Caring for a person living with motor neuron disease can be extremely hard, we’re here to help.
Advice and Support
Our advice and support team is ready to listen to your concerns and help solve any issues you’re facing.
Benefits advice
Our free benefits service can help you claim financial support you’re entitled to.
Grants for you
We offer a wide range of grants to help you live a good life and ease money worries.
Free counselling
We offer tailored counselling sessions to people living with MND and carers.
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