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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

What attendees learned at the Community of Research and lived Experience (CORE) event

17/04/2025

On 3 March 2025, MND Scotland and My Name’s Doddie Foundation welcomed people with and affected by MND from Scotland, and MND researchers from across the UK, to Dynamic Earth in Edinburgh for our inaugural CORE event. It was a wonderful experience which provided a platform for the MND community to come together and share their knowledge, opinions and experience on MND research through our shared goal of a world without MND.

Update on Medicines Repurposing Programme and low dose aldesleukin

The submission made in September has now been placed on the repurposing programme’s monitor list for review, pending trials results.

MND Scotland welcomes two new trustees

Richard and Bryan join MND Scotland, bringing key skills to the Board of Trustees.

Forfar man living with MND holds photography exhibition

Along with showcasing Ian’s photography skills, the exhibition was organised to raise money for MND Scotland.

Richard’s ROC triathlon trilogy in support of MND Scotland

Having completed events at Scafell Pike and Snowden, Richard is now eyeing to complete the ROC trilogy at Ben Nevis.

Update on MND-SMART clinical trial

The MND-SMART trial has announced the latest results.

Glasgow man takes on Great Scottish Run in tribute to grandmother

Having competed in 10k events, Bryan is now taking on the half marathon to raise money for people affected by MND.

Researchers all set to begin new MND Pre-Fellowship scheme

Two researchers passionate about investigating motor neuron disease (MND) have secured funding through a first-of-its-kind pre-fellowship scheme, funded by the MND Association and administered by MND Scotland.

Charity Trustee honours parents with 80-mile fundraising walk

In a heartwarming tribute to his parents, charity trustee Donald Macleod has taken on a remarkable 80-mile walk to raise money for MND Scotland.

Life with MND on the remote Isle of North Uist

Ani shares her story of living with MND on a remote Scottish island and how she's pulled together with her local community to raise more than £24,000 for MND Scotland.

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