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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

LEARN 2025 – Andrew’s blog for MND Scotland

17/10/2025

In this blog, Andrew Bethell, discusses what he enjoys most about his role as a MND Advanced Clinical Nurse Specialist for NHS Highland.

Tofersen receives positive opinion from European Medicines Agency Committee

A milestone for SOD1-MND care as the European Medicines Agency Committee recommends tofersen approval, 26 years since the last EU-approved MND treatment.

MND Scotland broadens Scientific Advisory Panel with five new members

The panel is responsible for peer reviewing research funding proposals and helping to set MND Scotland’s research strategy.

MND Scotland riluzole supply issues update

MND Scotland updates on the situation in Scotland regarding access to riluzole tablets.

MND Scotland welcomes new PhD student to explore role of microglia

Ms Lara Nikel (University of Oxford) joins MND Scotland’s community of funded researchers, alongside Professor Kevin Talbot and Dr Björn Vahsen.

MND Scotland statement on riluzole supplies

MND Scotland addresses a UK-wide shortage of riluzole tablets.

New documentary highlights pioneering scientific research into new targets for treatment of motor neuron disease

The documentary follows a key discovery made by researchers at University College London.

MND Scotland funds research to understand how families affected by genetic forms of MND use reproductive services

MND Scotland’s community of funded researchers welcomes Dr Alisdair McNeill and Shanice Allen (University of Sheffield).

New research institute to accelerate the search for a cure for MND

The UK MND RI has launched with the aim to discover new treatments that could ultimately mean MND becomes a curable condition.

Update on MND-SMART clinical trial

The MND-SMART trial has announced the latest results.

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