MND Scotland has launched a national survey to help shape the work of the charity and how we develop as an organisation.

The charity is now inviting people living with motor neuron disease (MND), those caring for someone with MND, and former carers to take part in the survey.

The survey will explore whether people affected by MND can access the support and services they need. Our aim is to find out what challenges, issues and barriers make life more difficult. We will also be asking what MND Scotland is currently doing well as a charity and what we can improve to support families and individuals better.

As we grow and develop as an organisation, we believe that people affected by MND are best qualified to tell us what is working, what isn’t, and how it can work better.

The findings from this survey will shape the work that we do as an organisation over the coming years.

Take part

We have created specific sets of questions for those living with MND, for families and/or carers, and for those who have been bereaved.

• I’m living with motor neuron disease [click]

• I am caring for someone [click]

• I cared for someone in the past [click]

Get in touch 

If you have any questions about the MND: What Matters Survey, or would prefer to receive or respond to the questions in another format, please get in touch at involvement@mndscotland.org.uk or on 07593 533 054.