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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

Global MND Awareness Day – 10 years on from the Ice Bucket Challenge

17/06/2024

MND Scotland is marking Global MND Awareness Day on Friday, 21 June by looking back at the ice bucket challenge.

Alison shares her story this Carer’s Week

Alison Barry made the decision to bring her partner, John Sharkey, home from hospital so she could care for him. Read more of her story here.

Remembering Rob Burrow CBE

Everyone at MND Scotland is deeply saddened to hear that English rugby star, Rob Burrow CBE, has died aged 41 from motor neuron disease (MND).

Friends conquer 60,000 steps to commemorate Orkney woman’s 60th birthday following MND diagnosis

The Orkney community stepped up to walk 6,000 steps a day to support Irene who was diagnosed with MND in July 2020.

Forfar man living with MND holds photography exhibition

Along with showcasing Ian’s photography skills, the exhibition was organised to raise money for MND Scotland.

Devoted husband and father of four opens up about life with MND

Mark is bravely sharing his story to raise awareness around motor neuron disease.

Dad’s MND Symptoms Mistaken for Signs of Aging

Scott Kerr bravely shares his dad's story to raise awareness about people diagnosed with Motor Neuron Disease (MND) later in life.

Tommy’s 26 years with MND

Having originally shared his story in 2017, ahead of Global MND Awareness Day, Tommy opens up about how his life has continued to change over the past six years.

Paula’s Story – Carers Week 2023

Paula's husband was diagnosed with MND at 49. For two and a half years, she cared for him and faced the challenges of navigating social care systems. In her own words, Paula shares her caregiving experience.

Anne’s Story – Carers Week 2023

Anne’s husband was diagnosed with bulbar onset MND in May 2020. He died in their local hospice in December 2021. For carers week, Anne shares what a day of caring for him involved.

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