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Read real stories from people affected by MND, get inspired by the incredible ways people are supporting our cause and hear more about the latest advancements in research, care and support.

Scotland’s leading motor neuron disease charity to host second research event in Edinburgh

16/09/2025

MND Scotland is hosting a free, interactive, and educational local research event in Edinburgh at Tynecastle Park on Tuesday 7 October 2025, from 2pm to 5pm, thanks to support from Heart of Midlothian F.C.

MND Scotland project highlights need for individualised support for those caring for loved ones with MND

The project, carried out at the University of East Anglia by Professor Eneida Mioshi and Dr Polly Trucco, aimed to identify key factors influencing anticipatory grief to better support unpaid family carers and inform future interventions and research.

Join us at CORE – a full day event for people affected by MND and researchers

MND Scotland and My Name’5 Doddie Foundation are teaming up to host a day-long event for people in Scotland affected by MND and MND researchers.

NICE decision on tofersen welcomed following successful MND Association campaign

We welcome the announcement this morning from NICE that they will now appraise the drug tofersen via the Highly Specialised Technologies (HST) route.

MND Scotland and Anatomical Society funded project to investigate ways to try slow disease progression by helping motor neurons regrow

Dr Murray and her PhD student, Ernie Ho, are testing the theory that, if motor neurons can be stimulated to regrow, it could help slow the progression of motor neuron disease (MND).

Publication of MND-SMART results in The Lancet Neurology

We welcome the timely publication of the MND-SMART trial results on memantine and trazodone in The Lancet Neurology.

Gordon Aikman Scholarship develops MND-specific Future Care Plan

Funding that honours the late motor neuron disease (MND) campaigner Gordon Aikman has delivered an MND-specific future care plan.

MIROCALS update – September 2024

As we enter September 2024, the data from the MIROCALS clinical trial has still not been submitted to an academic journal for publication, which would make the data available for the public and researchers worldwide.

Remembering Euan MacDonald MBE

We are deeply saddened to hear that Euan MacDonald, founder of the Euan MacDonald Centre for MND Research, has died at the age of 50.

MND Scotland provides funding for innovative research in MRI scanning for MND diagnosis

MND Scotland are investing £10,000, and working with the Neurosciences Foundation, to support an innovative study into the potential use of MRI scanning for diagnosis and monitoring of motor neuron disease (MND).

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