Support for people living with MND
If you have been diagnosed with motor neuron disease (MND), we can help you in a wide range of ways.
Our wellbeing and practical services can help you to feel more in control, lessen your anxiety and better manage your situation so that you can make precious memories with your loved ones and make time count.
Our expert information, advice and support can help you understand your illness better, prepare for the future and improve your quality of life.
Wellbeing Support
Being diagnosed with MND can be overwhelming. You may experience a range of difficult emotions and feel isolated and lonely.
These feelings may be something you struggle to talk to your family and friends about. You can speak to your MND clinical nurse specialist. They can provide you with emotional and practical support and help with a wide range of other issues.
MND Scotland is also here to provide a listening ear and give you the support you need. You can contact us on 0141 332 3903 (9am to 5pm, Mon to Fri) or support@mndscotland.org.uk.
Living with MND
Access key pieces of advice that we think will benefit anyone diagnosed with motor neuron disease.
Counselling
Access free sessions with a therapist to help you understand and manage your feelings.
Practical Support
We know that a diagnosis of MND can significantly affect your usual daily life. Factors such as employment, income, housing, and care needs can change. Sometimes these changes can occur quickly, or there may be repeated changes over the course of time. Our National Support Advisers (NSAs) can offer advice across a range of practical matters, to help ensure you do not feel alone or unsupported as you navigate these changes, whenever they occur.
Our experienced team can:
- provide confidential advice regarding benefit entitlement. They can check eligibility, assist directly with claims, and help to resolve any issues which occur
- assist with housing and social care queries. They can step in if you experience delays or issues with accessing the services or support you need – such as with home adaptations or care provision
- offer support with accessing grants – whether this be our own grant/s or through applications to other organisations
- refer or signpost to external partner organisations for expert advice about things like home energy, debt, employment, or technology.
Benefits and Income Maximisation
We can help you claim what you’re entitled to or check if you’re currently receiving the right benefits.
Housing and Social Care Advice
Whether you are struggling to get adaptations to your home, or a care package which you feel meets your needs, our advisers will be here to advise, and, in certain circumstances, intervene.
Additional Support
We know that there are times when your concerns and queries go beyond our main advice areas. Here is a snapshot of the wider support you may want to access.
Communication and Technology
SpeakUnique
If you have MND, live in Scotland and want to preserve your voice for the future, MND Scotland will cover the cost of you using the SpeakUnique service.
Tech Volunteer Support
Our partners at AbilityNet have a UK-wide network of Tech Volunteers who are available to offer free technology support.
Accessible Holidays
Accessible Holidays
Take a break for free in one of our Scottish holiday homes with up to six family members and friends.
Allied Vehicles Group
Our partners at Allied Mobility can provide complimentary Wheelchair Accessible Vehicles for transport to and from our holiday lodges.
Support Services Referral
If you have a general question about the service or any other services we provide, you can also use the form below.
