Dying to Care

The report highlights the problem faced by terminally ill people trying to access social care and has several recommendations for the Scottish Government and local Health and Social Care Partnerships. 

Download the full report.

Craig Stockton, MND Scotland’s CEO said, “MND is a rapidly progressing terminal illness which stops the signals from the brain reaching the muscles. This may cause someone to lose the ability to walk, talk, eat, drink or breathe unaided.  Average life expectancy is just 14 months after diagnosis.” 

“It is therefore essential that people with MND have access to the social care they need as quickly as possible and that it is flexible enough to adapt to the rapid deterioration they will experience.  Sadly, for too many people with MND, this is not the case. 

“This report outlines a number of steps the Scottish Government and Health and Social Care Partnerships can take to improve the situation for those with the illness, their families and carers.”